How should healthcare systems involve patients in evaluating their performance?

Health systems’ performance can be assessed by evaluating the extent to which they deliver the outcomes and experiences that matter most to patients. Patients have specific expertise and knowledge derived from lived experience; only patients – and, often, their families – see the “whole journey.” Patients can identify gaps in services, risks, superfluous services, and priorities, helping make healthcare both more effective and efficient.

This session takes a health systems’ perspective based on EPF’s work with patients on defining “quality” in healthcare, and links this to current initiatives on developing patient-centred healthcare quality indicators.

Participants will understand the value of looking at healthcare through the patient’s eyes when shaping healthcare quality improvement policies and actions at different levels; the importance of meaningful patient involvement; and develop an understanding as to the barriers that patients face in this area, as well as identifying solutions proposals to overcome these.

Session moderator: Josep Figueras, Director, European Observatory on Health Policy and Systems

Setting the scene: EPF’s work with patients on defining “good quality” healthcare:

• Representative, EPF

The experience and perspective of a patient advocate on quality improvement:

• Cristin Lind, patient advocate and partnership facilitator, Sweden

What the OECD PaRIS survey can contribute to improving patient-centredness:

• Katherine de Bienassis, Health Policy Analyst, OECD

Perspective on health systems and value-based healthcare:

• Thomas Allvin, Executive Director Strategy and Healthcare Systems, EFPIA
  European patient survey – what quality indicators matter most to patients when choosing a medical provider?

• Gregory Katz, Executive Manager and Professor, University of Paris