Thomas Allvin
Executive Director for Strategy and Healthcare Systems at the European Federation of Pharmaceutical Industries and Associations (EFPIA)
The congress' contributors
The congress'
Contributors
Donna became the Executive Director of EFNA in June 2012. Donna’s training is in Journalism, but she has worked with patient organisations in the neurological sector – in various roles – since leaving university. This included work with the European Migraine and Headache Alliance (EMHA) and the Migraine Association of Ireland (MAI), as well as being a representative to the Neurological Alliance of Ireland. She is currently a Board Member of the European Brain Council and a member of the European Affairs Sub-Committee at the European Academy of Neurology.
In her role with EFNA, Donna has led the development of EFNA’s Training Initiatives for Neurology Advocates (TINA), which aim to build the capacity of patients to engage in and meaningfully contribute to the Research & Development process, as well as policy and decision-making in areas such as HTA. EFNA has also recently conducted research projects on neurology patient engagement in HTA, the evidence from which will be used to support its advocacy work in topics such as ensuring equitable access to treatment.
Donna is also a member of a number of industry advisory groups, steering committees and patient councils.
Executive Director for Strategy and Healthcare Systems at the European Federation of Pharmaceutical Industries and Associations (EFPIA)
President of the EPF Youth Group
Co-founder & CRO, FibriCheck
Executive Director at the Biomedical Alliance in Europe
CEO, EIT Health
Special Advisor, EPF
Patient Engagement Liaison, European Medicines Agency
EUPATI Director of communications and advocacy
Chief Executive Officer of the US National Health Council
Professor of Innovation and Communication in the health and life Sciences
Director-General for Health and Food Safety, European Commission
Global Head, Patient Engagement Leader, Janssen
Director, Fédération des Etablissements Hospitaliers et d'Aide à la Personne, Privés Non Lucratifs (FEHAP)
Senior Health Economist, Belgian Health Care Knowledge Centre
Clinical Director for Personalised Care, NHS England
Patient Representative (ePAG), ReCONNECT
Health Policy Analyst, OECD
Special Advisor, European Forum for Primary Care (EFPC),
Medical Student, Erasmus University Medical Center in Rotterdam
Head of European Affairs for the European Research Infrastructure for Translational Medicine (EATRIS)
Director, European Observatory on Health Systems and Policies
Health Policy Analyst, OECD
Director, EngageMinds-Hub
Cand. Mag. Comm., consultant, user background Unit for Co-Creation Aalborg University Hospital, Psychiatry
Project Coordinator, HTAi Patient and Citizen Involvement Interest Group
President, EVITA, European Reference Network GENTURIS
Director of Policy, European Patients' Forum
Quality & Safety Officer, Platform for Continuous Improvement of Quality of Care and Patient Safety (PAQS)
Patient representative
President of The European Institute for Innovation through Health Data (i~HD)
Managing Director, EMSP
Chaired Professor of Innovation Management & Value in Health at the University of Paris Medical School.
Executive Director, EPF
Chief Patient Officer and Head of Patient Engagement, LEO Pharma
Independent, freelance consultant
Head of Legal Department, Greek National Organisation for the provision of Health Services
Senior Advisor at the Regional Ministry of Health and Families of Andalusia (Spain)
Director for Patient Safety and Quality Psychiatry Management - Northern Region of Denmark
EUPATI coordinator, EPF
Patient Representative, Ireland
Patient Representative, Ireland
Deputy Director of Employment, Labour and Social Affairs, Organisation for Economic Co-operation and Development (OECD)
Advisory Board Member, European Forum for Primary Care (EFPC)
Executive Director, for the Centre for Empowering People and Communities
Assistant Professor of Patient involvement in health research, policy-making and care practice at the Athena Institute of the Vrije Universiteit Amsterdam
Senior Editor at BMJ Publishing Group
Patient advocate, Karolinska Institutet, Stockholm, Sweden
Vice-Chair of the European Working Group of People with Dementia, Alzheimer Europe
EU Patient Engagement Lead, Merck Sharp & Dohme (MSD)
Senior Fellow, Friends of Europe
Data & Improvement Officer for Platform for Continuous Improvement of Quality of Care and Patient Safety (PAQS)
Patient Advocate, Dutch Patient Alliance for Rare and Genetic Diseases
Advocacy Officer, Platform for International Cooperation on Undocumented Migrants (PICUM)
Director of FEANTSA
President, European Federation of Pharmaceutical Industries and Associations (EFPIA)
Executive Director, European Federation of Neurological Associations
Member, European AIDS Treatment Group (EATG)
Expert at the National Institute of Public Health in Slovenia
More speakers Announced soon
Please check back later for updates.
President, EPF
Regional Director nominee for Europe, World Health Organization (WHO)
Director General, European Federation of Pharmaceutical Industry Associations
Chair, Patient Access Partnership (PACT)
Interim Chief Executive, Medicines and Healthcare products Regulatory Agency (MHRA), UK
Former Secretary of State for Health in Hungary, Director of the Health Services Management Training Centre of the Semmelweis University
Director General, Medicines for Europe
Principal eHealth Policy Analyst, European Health Telematics Association
Chief Advisor, Semmelweis University Health Services Management Training Centre
Young Patient Activist
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